The Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) is the Chicago Area Clinical Data Research Network (CDRN) focused on patient-centered outcomes research. It is designed to model characteristics required for development of the National Patient-Centered Clinical Research Network (PCORnet). CAPriCORN represents an ethnically and socioeconomically diverse population with significant disparities in access to and utilization of healthcare. Through its unique array of partners, including leading area medical institutions served by robust EHR systems and community partners engaged in health promotion and healthcare in the area, CAPriCORN will:
- Establish a network to share data
- Identify a cohort of over one million patients in the Chicago area
- Establish a sustainable platform for patient-centered outcomes research that engages clinicians, patients, and other stakeholders in carrying out meaningful research.
CHIP has been instrumental in designing the CAPriCORN network, scaling up knowledge of data linking and distributing query platform customization to centralize a data hub for Chicago area institutions.
CHIP Director Dr. Abel Kho serves as the PI of the CAPriCORN network and as the co-chair for the PCORnet informatics work group. Local site leadership for the Northwestern University site of the CAPriCORN network is CHIP Faculty Member and Site PI Dr. Faraz Ahmad.
Learn more on the CAPriCORN website.
Collaborators: Alliance of Chicago, Center for Medical Technology Policy, Clinical Directors Network, Cook County Health and Hospital Systems, Ann and Robert H. Lurie Children’s Hospital of Chicago, Loyola University Medical Center, Medical Research Analytics and Informatics Alliance (MRAIA), NorthShore University Health System, Rand Corporation, Rush University Medical Center, Tufts Clinical and Translational Sciences Institute, University of Chicago Medicine, University of Illinois Hospital & Health Sciences System, VA Healthcare, Vanderbilt University
Supporting Collaborators: AbbVie, BlueCross BlueShield of Illinois, CHITREC, Chicago Asthma Consortium, Chicago Department of Public Health — Healthy Chicago, Cook County, Columbia University STRIVE, Have A Heart for Sickle Cell Anemia Foundation, HealthCare Research Associates, Horizon Pharma, Illinois Association of Blood Banks, IBio Institute, Illinois Department of Public Health, Illinois Health and Hospital Association, Illinois Medical District Commission, PASTORS4PCOR, The Peggy Lillis Memorial Foundation, Respiratory Health Association, Sickle Cell Disease Association of Illinois, University of Chicago Medicine Comer Children’s Hospital, VA Information Resource Center, Vizient