The Parkinson’s Disease and Movement Disorders Center Biorepository is a biospecimen repository that stores genetic, biologic samples and detailed clinical information from patients and healthy controls evaluated at the Regenstein Center for Neurological Care at Northwestern Memorial Hospital. Participants include patients with movement disorders, including but not restricted to Parkinson’s disease, atypical Parkinsonian syndromes, Huntington’s disease, dystonia, lewy body dementia and spinocerebellar ataxia, unaffected family controls, and unrelated controls. Consent is obtained to conduct research on all participant’s DNA and clinical information. Optional biological samples are collected with consent: cerebral spinal fluid, skin biopsies, and plasma.
The following de-identified biospecimens linked to detailed clinical information are available:
- DNA samples
- Biological specimens: skin biopsies, cerebral spinal fluid and peripheral blood mononuclear cells (currently available for a limited number of participants)
- Brain tissue (currently available for a limited number of participants)
The biorepository data and samples are available to all Northwestern University and external investigators who submit an application. Please email Lisa Kinsley or Steven Lubbe for an application form.
All publications involving data provided by the Parkinson’s Disease and Movement Disorders Center Biorepository should include the following phrases:
- “and the Northwestern Movement Disorders Biorepository*” on the author line after the named authors, where the asterisk refers to an additional statement and list of Biorepository contributors (provided upon application of access).
- "Biospecimens analyzed for this article were obtained from the Movement Disorders Center Biorepository. For up-to-date information on the study, visit see the methods section in our website."
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