Research Associate Professor
Division of Organ Transplantation
Department of Surgery
Feinberg School of Medicine
Northwestern University

Institute for Healthcare Studies
Northwestern University
750 North Lakeshore Drive
10th Floor
Chicago, IL 60611

Telephone 312-503-5563
Fax          312-503-2777

e-gordon@northwestern.edu

Dr. Gordon is Research Associate Professor in the Institute for Healthcare Studies and Department of Surgery, Division of Organ Transplantation at the Feinberg School of Medicine at NorthwesternUniversity. Dr. Gordon completed her doctorate in Medical Anthropology at CaseWestern ReserveUniversity. Thereafter, she completed a Fellowship in Clinical Medical Ethics at the University of Chicago. Dr. Gordon obtained her Master’s in Public Health from University of Illinois, Chicago, specializing in Community Health Sciences.

Dr. Gordon’s research interests include: ethics of organ transplantation and donation, determinants of disparities in access to health care and health outcomes, health literacy, human subjects research ethics, self-care & chronic Illness management, and qualitative research & mixed methods. Dr. Gordon received a Career Development Award from the NIDDK to examine self-care and outcomes among kidney transplant recipients. Dr. Gordon currently serves on the Ethics Committee of UNOS and has been actively involved in the American Society for Bioethics and Humanities.

Selected Publications on End-Stage Renal Disease, Organ Transplantation and Donation

Kress J, Smith DL, Fehling P, Gordon EJ. Improving the Recruitment and Retention of Organ Procurement Coordinators: A Survey Study. American Journal of Transplantation 2009. In press.

Gordon EJ, Prohaska TR, Gallant MP, Siminoff LA. Self-Care Strategies and Barriers Among Kidney Transplant Recipients: A Qualitative Study. Chronic Illness 2009;5(2). In press.

Gordon EJ, Gallant MP, Sehgal AR, Conti D, Siminoff LA. Medication-Taking among Adult Renal Transplant Recipients: Barriers and Strategies. Transplantation International 2009. In press.

Devraj R, Gordon EJ. Health Literacy and End-Stage Renal Disease. American Journal of Kidney Diseases 2009. In press.

Gordon EJ, Ladner D, Caicedo JC, Franklin JE. Disparities in Kidney Transplant Outcomes. Seminars in Nephrology 2009. In press.

Gordon EJ, Wolf MS. Health Literacy Among Kidney Transplant Recipients. Progress in Transplantation Special Issue: Education in Transplantation. 2009;19(1):25-34.

Gordon EJ, Caicedo JC. Ethnic Advantages in Kidney Transplant Outcomes: The Hispanic Paradox at Work? Nephrology Dialysis Transplantation 2008 In press. [PMID: 19075197] e-pub Dec 15, 2008.

Gordon EJ. Prohaska TR, Sehgal AR. The Financial Impact of Immunosuppressant Expenses on New Kidney Transplant Recipients. Clinical Transplantation 2008; In press. [PMID: 18673373] epub July 21, 2008.

Parekh A, Gordon EJ, Garg AX, Waternan A, Kulkarni S, Parikh C. Living Kidney Donor Informed Consent Practices Vary Between U.S. and Non-U.S. Centers. Nephrology Dialysis and Transplantation 2008; class="volume"23( class="issue"10): class="pages"3316-24. In Press. [PMID: 18599559] epub: July 3, 2008.

Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Siminoff LA. Adherence to Immunosuppression: A Prospective Diary Study. Transplantation Proceedings 2007; class="ti"39(10):3081-5. [PMID: 18089327]

Kim SJ, Gordon EJ, Powe N. The Economics and Ethics of Kidney Transplantation: Perspectives in 2006. Current Opinion in Nephrology and Hypertension 2006;15(6):593-598. [PMID: 17053473]

Gordon EJ. The political contexts of evidence-based medicine: Policymaking for daily hemodialysis. Special Issue: “Social Science Perspectives on Evidence-Based Medicine and Practice,” Social Science and Medicine. 2006;62(11):2707-2719. [Epub class="ti"Dec 22, 2005. PMID: 16376472]

Gordon EJ. The Ethics of Medicare Policy: Increasing Transplant Access and Survival. DePaul Law Review 2006;54(3):101-122.

Gordon EJ, Prohaska T, Siminoff LA, Minich PJ, Sehgal AR. Can Focusing on Self-Care Reduce Disparities in Kidney Transplant Outcomes? American Journal of Kidney Diseases 2005;45(5):935-940. [PMID: 15861361]

Gordon EJ, Prohaska T, Siminoff LA, Minich PJ, Sehgal AR. Needed: Tailored Exercise Regimens for Kidney Transplant Recipients. American Journal of Kidney Diseases 2005;45(4):769-774. [PMID: 15806481]

Gordon EJ, Leon J, Sehgal AR. Why Are Hemodialysis Treatments Shortened And Skipped? Development Of A Taxonomy And Relationship To Patient Subgroups. Nephrology Nursing Journal 2003;30(2):209-218. [PMID: 12736999]

Gordon EJ. What “Race” Cannot Tell Us About Access to Kidney Transplantation. Cambridge Quarterly for Healthcare Ethics 2002;11(2):134-141. [PMID: 11901770]

Gordon EJ. “They Don’t Have To Suffer For Me”: Why Dialysis Patients Refuse Offers of Living Donor Kidneys. Medical Anthropology Quarterly 2001;15(2):245-267. [PMID: 11452630]

Gordon EJ. Patients’ Decisions for Treatment of End-Stage Renal Disease and their Implications for Access to Transplantation. Social Science and Medicine 2001;53(8):971-987. [PMID: 11556779]

Gordon EJ. Stability of ESRD Patients’ Treatment Decisions. Transplantation Proceedings 2001;33(6):3006-3009. [PMID: 11543827]

Gordon EJ. Preventing Waste: A Ritual Analysis of Candidate Selection for Kidney Transplantation. Anthropology & Medicine 2000;7(3):351-372.

Gordon EJ, Sehgal A. Patient-Nephrologist Discussions about Kidney Transplantation as a Treatment Option. Advances in Renal Replacement Therapy 2000;7(2):177-183. [PMID: 10782736]



Selected Publications on Human Subjects Research Ethics and Clinical Ethics

Gordon EJ, Philpott S. The Convergence of Research and Clinical Practice: How Institutional Review Boards Review Humanitarian Use Device Applications. Journal of Empirical Research on Human Research Ethics 2008;3(4): 81-98.

Gordon EJ, Prohaska TR. The Ethics of Withdrawal from Study Participation. Accountability in Research: Policies and Quality Assurance 2007;13(4):285-309. [PMID: 17849641]

Gordon EJ, Yamokoski A, Kodish E. Children, Research, and Guinea Pigs: Reflections on a Metaphor. IRB: Ethics & Human Research 2006;28(5):12-19. [PMID: 17152130]

Gordon EJ, Hamric AB. The Courage to Stand Up: The Cultural Politics of Nurses’ Access to Ethics Consultations. The Journal of Clinical Ethics 2006;17(3):231-254. [PMID:17186936]

Gacki-Smith J, Gordon EJ. Resident Physicians’ Access to Ethics Consultations: Knowledge, Use, and Perceptions. Academic Medicine 2005;80(2):168-175. [PMID: 15671324]

Orfali K, Gordon EJ. Autonomy Gone Awry: A Cross-Cultural Study of Parents’ Experiences in Neonatal Intensive Care Units. Special Issue: Pediatrics. Theoretical Medicine and Bioethics. 2004;25(4):329-365. [PMID: 15637949]

Gordon EJ. Trials and Tribulations of Navigating Institutional Review Boards and other Human Subjects Provisions. Anthropological Quarterly (Invited) 2003;76(2):299-320.

Gordon EJ, Daugherty CK. ‘Hitting You Over the Head’: Oncologists' Disclosure of Prognosis to Advanced Cancer Patients. Bioethics 2003;17(2):142-168. [PMID: 12812182]

Gordon EJ, Micetich K. Competing Clinical Trials in the Same Institution: Ethical Issues in Subject Selection and Informed Consent. IRB: Ethics & Human Research 2002;24(2):1-6. [PMID: 12374154]

Gordon EJ, Daugherty CK. Referral and Decision Making Among Advanced Cancer Patients Participating in Phase I Trials at a Single Institution. The Journal of Clinical Ethics 2001;12(1):31-38. [PMID: 11428154]

Gordon EJ. When Oral Consent Will Do. Field Methods 2000;12(3):235-238.



Book Chapters

Gordon EJ, Levin BW. Contextualizing Ethical Dilemmas: Ethnographic Methods in Bioethics. In: Empirical Methods for Bioethics: A Primer. (Advances in Bioethics, Volume 11.) Liva Jacoby and Laura Siminoff, (Eds.). Elsevier. 2008, pp. 83-116.

Gordon EJ. International Perspectives on Organ Donation. In: Autonomy and Human Rights in Health Care: An International Perspective. David N. Weisstub  and Guillermo Diaz Pintos, (Eds.). Dordrecht, The Netherlands: Springer. (Invited). 2008, pp. 235-256.

Gordon EJ. Bioethics: Contemporary Anthropological Approaches. In: Encyclopedia of Medical Anthropology: Health and Illness in the World’s Cultures. Carol R. Ember, Melvin Ember, (Eds.). Kluwer/Plenum Publishers. (Commissioned), 2004, pp. 73-86.

Gordon EJ. Revision to: Health & Disease: III. Anthropological Perspectives. In: Encyclopedia of Bioethics, 3^rd Edition. Stephen G. Post, (Ed.). New York: MacMillan Reference, 2004, pp. 1070-1075. (Commissioned).

Gordon EJ. Revision to: Contemporary Issues in Hospital Ethics. In: Encyclopedia of Bioethics, 3^rd Edition. Stephen G. Post, (Ed.). New York: MacMillan Reference, 2004, pp. 1179-1184. (Commissioned).

Gordon EJ.  The Role and Responsibility of the Media in Relation to Organ Donation and Transplantation. In: The Ethics of Organ Transplantation, Volume 7. Wayne Shelton and John Balint, (Eds.). New York: JAI Press, 2001, pp. 293-315.



Reviews, Editorials and Media Interviews

Gordon EJ, Wolf MS. Beyond the Basics: Designing a Comprehensive Response to Low Health Literacy. Peer Commentary. American Journal of Bioethics 2007;7(11):11-13.

Gordon EJ. Review (Invited) of: Inclusion: The Politics of Difference in Medical Research by Steven Epstein. 2007. Chicago, IL: University of Chicago Press. New England Journal of Medicine 2007;357(10):1060-1061.

Gordon EJ. A Better Way to Evaluate Clinical Ethics Consultations? An Ecological Approach. Peer Commentary. American Journal of Bioethics 2007;7(2):26-29.

Gordon EJ. A Gated Community for Organ Donors. Interview by Kathleen Kingsbury. Time Magazine June 14, 2007.

Gordon EJ. Make It So!: Advocating for UNOS Policy Change. Peer Commentary. American Journal of Bioethics 2005;5(4):21-22.

Gordon EJ. Commentary on Michael Carrithers’ “Anthropology As A Moral Science of Possibilities.” Current Anthropology 2005;46(3):448-449.

Gordon EJ. Haunted by the “God-Committee”: Reciprocity Does No Justice To Eliminating Social Disparities. Peer Commentary. American Journal of Bioethics 2004;4(4):23-25.

Gordon EJ. Review of: Bioethics as Practice by Judith Andre. 2002. Chapel Hill, NC: University of North Carolina Press. Cambridge Quarterly for Healthcare Ethics 2004;13(3):307-309.

Gordon EJ. “Concerns about Conduct are Growing, but Can Research Ethics be Taught?“ Interview by Catherine Harris. Published in IRB Advisor 2003;July.

Gordon EJ. The ASBH Membership Survey: Preliminary Findings. (Invited). ASBH Exchange 2002-2003;5(3):1,6-7.

Gordon EJ, Parsi KP. It’s Alive!: Giving Birth to Research Ethics Education. Peer Commentary. American Journal of Bioethics 2002;2(4):65-66.

Gordon EJ. Review of: Country Doctor: A Memoir by Ben Dlin. 2000. Prince George, B.C.: Caitlin Press, Inc. American Journal of Bioethics 2002;2(3):61-63.

Gordon EJ. Review (Invited) of: Extending the Boundaries of Care: Medical Ethics and Caring Practices by Tamara Kohn and Rosemary McKechnie, (Eds.). 1999. New York: Berg. American Anthropologist 2002;104(1):361-363.

Ramalingam ND, Gordon EJ, Ross LF. Attitudes and Practices in Postmortem Organ Procurement. Research Letter. JAMA 2001;285(15):1958.

Gordon EJ. Review of: Beyond Consent: Seeking Justice in Research by Jeffrey P. Kahn, Anna C. Mastroianni, and Jeremy Sugarman, (Eds.). 1998. New York: Oxford University Press. Cambridge Quarterly for Healthcare Ethics 2001;10(3):351-353.

Gordon EJ. ”Moralische Taschenrechner.” Interview by Von Gaby Schweizer. Published in Die Ziet, (German Newspaper) 2000;47.

Gordon EJ. “If It’s Not Broke, Don’t Fix It”: Patients’ and Clinicians’ Decision Making for Treatment of End-Stage Renal Disease in the United States. Doctoral Dissertation, Medical Anthropology, Case Western Reserve University. [Ann Arbor: UMI 1999 #9927310].