Northwestern University Feinberg School of Medicine

Institute for Public Health and Medicine

A Community-Generated Palliative Care Telemedicine Consult Program for Rural Black Elders: A Feasibility Study

June 13, 2013

Buehler Center Faculty Collaborate on Telemedicine Development

We are proud to announce that Buehler Center director Linda Emanuel, MD, PhD, and assistant director Joshua Hauser, MD are currently participating on an innovative new project led by Ronit Elk, PhD of the South Carolina College of Pharmacy at the University of South Carolina to design and implement a palliative care telemedicine system. Two studies, entitled “A Community-Generated Palliative Care Telemedicine Consult Program for Rural Black Elders: A Feasibility Study” and “Designing a Community-Generated Culturally-Tailored Palliative Care Telemedicine Program for Rural African American and White Patients: Phase 1: Understanding the Community” have been funded by the University of South Carolina and the Medical University of South Carolina (MUSC) respectively.

These studies will be the first to use community-based participatory research to develop a culturally-appropriate palliative care program tailored to rural elders. This approach will begin with focus groups with African-Americans and White rural families who have been involved in the care of an older loved one who has since passed away. Information from the focus groups, as well as direct input from a Community Advisory Group, will then be used to develop a culturally tailored palliative care telemedicine program for the care of African American and White elders residing in rural South Carolina. This program has the potential to greatly reduce the suffering of ill older adults living in rural areas, while facilitating continuity of care and meeting the specific care preferences of African-Americans and Whites in a culturally sensitive manner. This program has the potential to be adaptable to other rural areas and other racial/ethnic minority groups.

Center: Buehler Center on Aging

Originating Sponsor: University of South Carolina, Office for the Vice President for Research

NU/Site Principal Investigator:
Joshua Hauser, MD